musings in mayhem

writer, mom, tutor, superwoman

john elder robison, neurodiversity

Yesterday, John Elder Robison gave a talk at William & Mary College.

I brought Captain Comic. We were early. We were very early, and it was beautiful day out, but there were bugs – two bees and a hornet to be exact – that buzzed by us on their way elsewhere, so he wanted to go inside. Of course, I wanted to stay outside. He suffered nobly and drew for as long as he could stand. Then we went inside. There is always a give and take, a finding the balance between the extremes.

Admittedly, I hesitated about bringing him, figuring that during the lecture, the Captain would have a tough time with the crowd full of shifters and breathers, coughers and sneezers for the scheduled hour and a half sit. But by a stroke of luck and a Facebook post in which I tagged JER, we were given seats down front. JER was very friendly to the young aspies in the crowd waiting to get in, and brought them and their people in ahead of the main audience.

Captain Comic did have a time of it before, and after in the book signing line, but he held it together a lot better than I expected or feared. He surprised me during the talk, by being completely riveted by JER.  Though Capt and JER have differences in their areas of interest, they have very similar ways about them that buck the usual assumptions about autism – they are both very funny and speak in a booming way, and are very apt to keep right on speaking when they are talking about what interests them. And explosions, Captain Comic’s eyes widened and he laughed a lot when JER talked about explosions, especially the magnesium fire incident when he was teen.

I just hope he didn’t give the Captain any instructionally related ideas.

What I took away from the talk was that Aspergerians are necessary and have always been a part of the general society. The very thing that sets them apart is what can bring them success later in life, even when the social part of it is so hard when they are young. The social isolation and hyperfocus in areas of interest allows for them to spend hours a day learning and doing what others would not. For instance, think of Stonehenge or the pyramids: before there was written language and math, someone had to visualize and execute the exact engineering behind those structures that line up to the stars to determine certain seasons of planting and harvesting. Who do you think had the time and visual thinking to come up with that? That’s right, people on the Autism Spectrum.

Things that stood out for me:

As socially isolated as he was when he was young, JER found an accepting community who appreciated what he could do for them, and accept him the way he was: the “mad dogs and freaks” of the music world.  This means, Captain Comic will find his niche, too. I have thought about this before, and talked with him about finding his way among people who will accept him as an illustrator or such in the digital animation studios or Google, etc.

Even after his commercial successes, JER still had an inverted sense of confidence.  He knew he was successful, but still felt like he he was screwing up or faking it because he didn’t do things the socially prescribed way. Enough people had responded to him in that regard over the course of lifetime. I see this with the Captain, too. I hope I can be more aware of helping others understand that how he learns and walks through the world is just as acceptable as the way anyone else does. I think there is a growing movement of us more neurotypicals working toward that, including the new program being built at W&M to accommodate students with differences – what brought JER to speak here.

When he figured out how logical good manners were, and made a concerted effort to learn them and use them,  that’s when people started choosing to hang out with him. Also when he learned that you almost never get into trouble if you learn to keep your mouth shut. I think these are particularly good for Captain Comic to hear from someone like himself.

JER realized after his brother’s memoir, Running with Scissors came out, the way people responded to it was the exact opposite of what he feared. He knew his family was crazy and weird, but now people approached him and told him their families’ weirdness. Then he realized that that the feelings he had of being a fake or not fitting in were shared by EVERYONE. Everyone feels alone, and reaching out and connecting is what is important to relieve that loneliness.

One of the common misperceptions about autism is that people with it lack emotion or empathy. Honestly, if you meet Captain Comic even once, you would know that is not true in the slightest. Break past those social expectations that he doesn’t meet, and inside is a very loving guy. So everyone, including people with autism, have the same feelings.

JER learned how to not make enemies. This is separate from learning how to make friends, and an important survival skill. It largely entails keeping your mouth shut. Don’t make yourself a target. Bullies will leave you alone. “This one is not good to eat” is the message you will give to bullies if you just keep quiet. So act like a possum and do not draw attention to yourself.

Geeks are valuable.

After the lecture, we stood in line to get my copy of Look Me in the Eye signed, and I picked up his new book, Be Different, which is more of a practical guide to autism and Asperger’s. I have read many practical guides in this area, and if I will enjoy one, it will be his. JER’s books are very anecdotal, which is exactly how I think and talk.

I squeezed the two aspies together for a picture – lo and behold, betwixt their expressions is the cover of Look Me in the Eye! Of course, this is mostly because of the flash and the fact that Captain Comic was well ready to leave.

In the end, I was very glad that I did decide to bring Captain Comic. He surpassed the response I feared, I was able to enjoy the lecture even more by watching his reactions to a lot of what John Elder Robison said. He was very attentive, absolutely riveted, until the very end in the Q&A portion, when one aspie asked about engineering stuff, and that was about when Captain Comic started asking if it was time to leave yet. He had lasted the whole talk, an hour and a half, without a peep. Miraculous, trust me, especially since we had arrived so early and had to wait.

I highly recommend that if John Elder Robison comes to talk in your vicinity, you should make the effort, even if it seems tough, to go see and hear him. He was funny, insightful, passionate and informative, a fantastic speaker on a very timely topic.

And pick up his books. They are well worth the read. He is a great story teller with tales of being on the road with bands like KISS in the 70s. His stories  bridge that gap between people of any stripe to say, hey, I can recognize myself in you.

 

 

 

end of school break

Captain Comic reaches for the tablet, in his neverending quest to play Angry Birds.

Mom: (Succinctly) No.
Captain Comic: (Brightly) Please?
Mom: No.
Capt: Please?
Mom: No.
Capt: Please?
Mom: No.
Capt: Please?
Mom: No.
Capt: Please?
Mom: No.
Capt: Please?
Mom: Do you really think this is going to work?
Capt:(Throws in a big smile) Please?
Mom: No.
Capt: (Pleadingly) Oh c’mon.
Mom: No.
Capt: (Goes in for a hug) Pleeease?
Mom: No, you already snuck it today.
Capt: (Recognizes defeat and walks away. Begins to raid the pantry and refrigerator)
Mom: Stop foraging!

Yesterday, Mr. Cynic came down with the cruds after snuffling his way through all of  spring break. Today he feels better, but Toots woke us with the dreaded 5am call of the small child, “Mommy! I few up!”

Thank goodness school starts back on Monday.

birthday

It has taken me a while to sit down and post Toots’s birthday. It is school break, big allergy season for my household, the pollen is even giving me a run for my money this year!  And I finally printed up my manuscript, which I’m still mildly apprehensive about reading through. And I burnt out my printer and made a bit of a day of it at Office Max to get the job done. Enough excuses, her birthday was a joyful day, and I think everyone had fun. Per usual, I held the camera, thereby managed to avoid being captured.

I went into her room first thing in the morning to cuddle with her in her new big girl bed on the morning she turned four. Honey and I finished the antique process the day before and he assembled it in her room to wake up in on her birthday. She was really excited about her new bed! She picked out the sheets and new quilt, etc.

Her walls are cafe au lait because this used to be Captain Comic’s room, and I thought it would be a soothing color for a retreat space for him when we moved in six years ago. Now it just looks like mud. Painting is a bit of problem, I would love to liven up the room, but standard paints send me into respiratory distress. I am thinking of a way we could milk paint the room, much like we did with her bed frame.

Don’t be distressed by the expression on her face in the picture with the bed. She had just gotten a booboo on her thumb. She really does love her new big girl bed!

This slideshow requires JavaScript.

The birthday festivities included a Diego cake (I missed making her cake myself, she was pretty adamant about Diego – but I did make scratch cupcakes for the in preschool celebration and I must add, they were the fluffiest best cupcakes I have ever made) which made for blue lips all around; slide and trampoline were very popular; all the little kids had a go at the pinata before my friend’s older daughter’s 1st whack burst it and then Captain Comic destroyed it (which was his mission of the day); presents; and lots of running around and fun. I once again realized that the average age of Toots’s preschool friends’ moms is about 15-20 years younger than I am. sigh. They’re very nice, I just feel like a polka dotted horse among zebras.

Toots was so excited all day long, and loved her birthday very much!

So did I.

how does it happen

One day, which seemed to go on forever, I was pregnant.

Then 4 years ago, on April 1st, Toots made a rather extreme entrance to the world. Seriously, she almost landed on the hospital room floor. And that’s generally her personality now. When she’s ready for something, she knows it, and consequently so does everyone else rather soon after.

Toots at six months

Toots at one year

Toots at two

Toots at three with low piggie tails

Now she is four.

I usually post my kids’ bdays as lists by age of interesting things about them. Her list is fairly short, only because she hasn’t tallied a whole lot of years. But she has done a whole lot of living.

1. Toots isn’t exactly a Tomboy, but she keeps up with her really big brothers and can hold her own. She chooses to wear dresses about as often as I do – not very often at all. She has her own flair when she dresses, mixes patterns and loves cwazy socks. she manages to still be pretty well color-coordinated even with hearts and stripes and polka dots. She loves hiking and camping and gardening.

2. Her hair is near unto un-tamable. she has cowlicks off the back of her head that have their own minds and curls that go in every direction, but mostly right over her face. Her eyes are sparkly coffee beans.

3. She’s smart. She reads, she tells stories, makes up songs, has her fingers talk to each other, her feet, even her knees, which by the way, one knee is a boy and one knee is a girl. and they each have their own voice. She is sarcastic already, and makes wacky faces pursuant to any given situation.

4. She is a cuddler, she squeezes into every nook and cranny of me. She loves and loves and laughs and acts silly and wants to make everyone smile.

What’s not to love

April Fool’s Day hasn’t been the same since.

And this year, neither will Palm Sunday. Our yard (barring rain) will be full of her peers.

it begins…

child of a writer….

 

She told it to me much more animatedly before I turned the camera on.

projects

This past weekend, Honey and I started the stripping, power-washing, sanding and milk-painting of Toots’s new big girl bed, which will be her upcoming birthday present. A local friend had this project sitting in her garage long enough for her kids to grow up and then it sat in ours for a couple of years, too. Finally, we got to it. Toots was an excellent helper during the process. It took most of the weekend to get one set of head and footboards completed. On Saturday, St Patrick’s Day, Captain Comic made a brief appearance to ask what we were doing then disappeared. Mr. Cynic, the stealth teen, never appeared. I think a few grunts from the sofa and from the computer matched his vocal register over the course of the weekend. Guitar jangles and some singing were heard from on high, as well…from the deep recesses of The  Mess Which Doth Not Subside aka the boys’ room upstairs.

Toots even took a couple of photos above! Then she acted the Pin-up and wanted her pic taken. We’re in trouble later, aren’t we?

~~~~~~~~

Yesterday, my writing group got down to business very quickly, and it was just what I needed! I finally FINISHED Draft Three of my manuscript!!!!

I will let it sit a couple of weeks or so, let my usual readers peruse it, and then assess whether it really is ready to be sent out. Then it is query letter time.

The best part about this stage of the writing is I think I will have more brain space and patience for my family, as I am so less frustrated with the writing process mingled with family and work, etc.

And then I will start something new! Because, I wouldn’t be me if I weren’t up to something.

freddie the froggie

Freddie the Froggie is a preschool buddy that Toots and her classmates take turns bringing home and journaling adventures together.

Thankfully, yesterday, I had off from work. I have been intending to start gardening for a while, but between weather and time, I didn’t get going til Freddie came home with us. So we set out to plant seed trays of lettuce and spinach with him. Of course, I apparently cleaned out any seed trays I had lying around last year, so we had to take a trip to the garden center, and first, we had a nacho lunch picnic.

This slideshow requires JavaScript.

Yes, I have a lot of work to do in the garden beds before I can plant this year.

thwarted

The rain has thwarted my gardening plans for the day. Toots was looking forward to being my helper, too, especially after finding little Tinkerbell gardening gloves this weekend.

Instead, so far, we have started laundry and thwarted the giant monster who was holding her invisible friend Clifford (yes, the Big Red Dog)  hostage, trapped in a giant trap but how she could somehow still call on her toy cellphone and discuss rescue plans. She played both sides of the conversation.

kansas two-step

Long ago and far away…Okay, okay, I’ll stop.

But really, I think it was about 1991 and a Boston Poetry open mike night, though I can’t recall which one, because before I had kids, there I was three or four nights a week. Really. It seems most likely it was at the old Bookcellar Cafe in Cambridge or Stone Stone Poetry at TT the Bears in Central Square, Cambridge  when I met him.

Anyway this odd looking character, not unpleasant looking, just odd walked in. A lot of odd people hang out at poetry readings. But H. B. Berlow looked like Mephistopheles with his pointy goatee and waxed mustache. Comically sinister, and he did that thing with his hands, that gesture that he was thinking something mischievous, fingertips dancing against each other, as he raised his eyebrows in quick success, too – straight out of Groucho Marx’s repertoire.

Of course, I didn’t think, “RUN! RUN NOW Run fast!” NO, no, no, I thought, “wouldn’t he be fun to know?” And he was.

For a  few years, he and another dear friend, Joe, and I met for coffee and writing critique at Joe’s place, a little room on the fourth floor on Comm Ave where we watched the sun and clouds and volatile seasons with peaceful sunsets cross the surface of the Hancock Tower and  passionately tore each other’s work apart and built it back up again.  I trusted those guys with my writing, and I hope and think they trusted me with theirs. Critique groups since have had a hard time meeting the bar of what we did all those afternoons in the early nineties. H. B. with his reams of green paper was particular, exacting and always enthusiastic.  We also animatedly discussed everything from baseball to Kierkegaard, rock and roll to Berlioz.

And then H. B. followed a woman to the land of Great Plains and strip malls, and a decade or more later I followed a man to Virginia, and at some point, Joe moved out of that little room all the way to Cambridge and is still among my dearest friends. I hate to stay it, but H. B and I lost touch for a long time, but Joe filled me in on his doings from time to time. About a year or so ago, H. B. and I got back in touch around a Nanowrimo, I think, with a little reconnecting thread from Joe’s needle.

In the time since, H. B. Berlow has published the above book, Kansas Two-Step. It has arrived at my door via a little contest he announced on his blog, The Tikiman Says. I got lucky in the random drawing. But at least I gave him a good laugh in the process. He asked for entrants to comment on his webpage re: what their favorite dance is. Here is my guestbook comment:

i do a rather cockeyed shuffle ball change in my kitchen often enough to embarrass my kids. that is my favorite dance, esp when the teen’s friends are here.

This is not a review. Admittedly, I haven’t read the book yet, it just arrived, but if the H. B. I knew and read with relish in my twenties is anything like the one I know now, and I can assure you he is – funny, irreverent, thoughtful, imaginative and full of pop culture and high art references – then you will love this book. And I can guarantee his writing has only improved through passion and diligence in the past twenty or so years. That is the H. B. Berlow I knew, who wrote fiction, poetry and plays, often at the same time.

Click on the book image to purchase Kansas Two-Step!

love

And they say people with autism have no empathy. Look at the love and empathy on Captain Comic’s face as he cradled Lucy this morning on the way home from the vet after yesterday’s bladder stone surgery.

He really loves her.

She tried to eat the vet when he attempted to give her her antibiotic this morning.

I gave it to her fine.

Lucy is a nervous little dog who was a stray possibly for the first year of her life. We’ve had her since. She loves us and we love her, even when she is too revved up and knocks Toots down, or jumps too much and barks at guests, or anyone who walks or drives down the street…She’s not to keen on men who aren’t part of our family.

She escapes underfoot through our front door, and always comes home within five minutes. It’ll be tough to keep her from running until the sutures come out in 10 days…and tough to keep that cone on.

I’m sure glad she’s home.

Post Navigation

Follow

Get every new post delivered to your Inbox.

Join 25 other followers